So it's been a whirlwind of a two months (+ some) since Alexandra's surgery. We were pleased to be able to take her home so early, even if we did have to rush order everything because we didn't know she would come home so quickly. But we were (and are) happy to be able to finally have her come home with us. Since then, it's been a dizzying array of appointments, medications, fortified formula recipes, pulse oximetry measurements, and it's pretty much all we can do to keep our heads on straight. But we're getting used to it, as is she (she still hates the taste of her Zantac something fierce) and the routine has become part of our life. We now know what to watch for, which helped us to realize that there was a little something off with her when her oxygen saturations, still above the danger zone, were low for what we knew of her. Which brings me to my next point: The cardiologist confirmed what we had suspected about Alexandra's sats being too low for comfort which he said was a result of the shunt in her heart shrinking. Because of this, she will be in
Boston on Tuesday where she will be catheterized and they will use a balloon to expand the shunt and buy her some more time till her surgery to grow and get strong. We are confident that she will be fine and are grateful for the support you all have given us thus far. Thanks!